University of Connecticut |
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Disability-Related Resources
Developmental / Intellectual DisabilitiesCONNECTICUT A.J. Pappaniikou Center for Excellence in Developmental Disabilities The Center provides model programs in innovative disability related research, training, and technical assistance. Strong collaborations with the University of Connecticut, University of Connecticut Health Center and Disability Network contribute to the Center's success in advancing policies and practices to support individuals with disabilities.
The Arc of Connecticut is an advocacy organization committed to protecting the rights of people with intellectual, cognitive, and developmental disabilities and to promoting opportunities for their full inclusion in the life of their communities. Best Buddies is a nonprofit organization dedicated to enhancing the lives of people with intellectual disabilities by providing opportunities for one-to-one friendships and integrated employment. Best Buddies is a vibrant, international organization that has grown from one original chapter to more than 1,300 middle school, high school, and college campuses across the country and internatinoally.
The Connecticut Developmental Disabilities Network (DDN) was established to provide leadership for the implementation of the federal Developmetnal Disabilities Assistance and Bill of Rights Act. It is made up of the following organizations: Connecticut Council on Developmental Disabilities, Connecticut Office of Protection and Advocacy, and the University of Connecticut's A.J. Pappanikou Center for Excellence in Developmental Disabilities. These three roganizations share the following common goal and purpose: "The protection and full integration of individuals with developmental and other disabilities in to society in a manner that is consistent with unique strengths, resources, abilities and capabilities of each individiual and his or her family."
Oak Hill helps people with disabilities experience rich, fulfilling lives in communities throughout Connecticut. Through education, assistive technology, programs and advocacy, we support them at every stage of life. We also provide a robust array of services to those people who work with, live with, and care for people challenged by disabilities. Oak Hill serves children and adults with intellectual, developmental, and phyiscal disabilities. Today it is the largest private nonprofit community provider of services for people with disabilities in Connecticut. Disability Resources is a nonprofit organization estaglished to promote and improve awareness, availability and accessibility of information that can help people with disabilities life, learn, love, work, and play independently. They serve thousands of individuals with disabilities through a multidisciplinary network of service providers and consumers. In order to reach as many people with disabilities as cost effectively as possible, they target their services and publications to libraries, disability organizations, independent living centers, rehabilitation facilities, educational institutions, and health and social service providers. Visit their site for Connecticut resources via the above link or visit their home page at www.disabilityresources.org. HART United, Inc. is a nonprofit agency located in Connecticut which provides support services to individuals with developmental disabilities. Today HART provides supports to individuals in a variety of settings throughout Connecticut. Inclusion and community supports have enabled their consumers to become strong and independent citizens contributing to our society in positive ways each and every day.
The purpose of the PERC project is to demonstrate and research exemplary practices in supporting students with intellectual disabilites ages 18-21 in postsecondary settings. This five-year model demonstration project will involve collaboration between TransCen and two public school systems currently serving students with intellectual disabilities in college settings in Maryland and Connecticut. The PERC sites in each state will serve as model replication hubs, providing technical assistance and replication strateiges to other school systems interested in successfully establishing or improving this model of service delivery for their students ages 18-21 with intellectual disabilities.
American Association on Intellectual and Developmental Disabilities (AAIDD) AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.
ANCOR is a nonprofit trade association representing and advocating on behalf of the more than 800 private providers of services and supports for 385,000 Americans with disabilities that employ over 310,000 direct support staff in 49 states and Washington, DC.
The AUCD is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. These programs serve and are located in every U.S. state and territory and are all part of universities or medical centers. They serve as a bridge between the university and the community, bringing together the resources of both to achieve meaningful change.
The database is designed to provide a comprehensive, searchable bibliography of journal articles summarizing research on cognitive technologies for persons with intellectual and developmental disabilities (I/DD). The database is structured to allow visitors to identify research articles relevant to their specific needs and is intended to help generate bibliographies for researchers and students, support providers, and other professionals, families, and consumers with disabilities about existing and emerging technologies for persons with I/DD. Policy makers and I/DD agency officials may also find this bibliography a helpful resource in their efforts to provide and finance cognitive technology devices and services.
The HEATH Resource Center is an online clearinghouse on postsecondary education for individuals with disabilities. HEATH participates in national conferences, training sessions, and workshops; develops training modules; publishes resource papers, fact sheets, directories, and website information; and fosters a network of professionals in the area of disability issues.
The ICI at the University of Massachusetts-Boston supports the rights of children and adults with disabilities to participate in all aspects of the community. As practitioners, researchers, and teachers, they form partnerships with individuals, families, and communities. Together they advocate for personal choice, self-determination, and social and economic justice. Visit their website for a research paper on Postsecondary Education Options for Students with Intellectual Disabilities.
NADS is the oldest organization in the country serving individuals with Down syndrome and their families. It was founded by parents who chose to go against medical advice and raised their children with Down syndrome at home. Their pioneering efforts have made it easier for later generations of individuals with Down syndrome to be accepted by their families and communities, to develop their capabilities, and to work towards independence. NADS mission is to ensure that all persons with Down syndrome have the opportunity to achieve their potential in all aspects of community life. They offer information, support, and advocacy.
NADD is a not-for-profit membership association established for professionals, care providers, and families to promote understanding of and services for individuals who have developmental disabilities and mental health needs. The mission of NADD is to advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care.
NACDD is a national, member-driven organization consisting of 55 State and Territorial Councils. NACDD places high value on meaningful participation and contribution by Council members and staff of all Member Councils, and they advocate and continually work towards positive system change on behalf of individuals with developmental disabilities and their families.
The Association's goal is to promote and assist state agencies in developing effective, efficient service delivery systems that furnish high-quality supports to people with developmental disabilities. In pursuit of this goal, NASDDDS strives to provide member state agencies with timely analyses of federal statutory and regulatory policies that affect people with disabilities; disseminate cutting edge information on state-of-the-art programs and service delivery practices; provide technical assistance and support to member states; and offer a forum for the development of state and national policy initiatives.
The NCSET was established to create opportunities for youth with disabilities to achieve successful futures. NCSET provides technical assistance and disseminates information focused on four major areas of national significance for youth with disabilities and their families. Visit their website for an Information Brief on Transition Services for Students Aged 18-21 with Intellectual Disabilities in College and Community Settings: Models and Implications of Success.
The mission of the NDSC is to provide information, advocacy, and support concerning all aspects of life for individuals with Down syndrome. Visit their Parent Resources page for timely, accurate, and up-to-date information which is key to enhancing the lives of people with Down syndrome, regardless of age.
The mission of the NDSS is to benefit people with Down syndrome and their families through national leadership in education, research, and advocacy. NDSS is committed to being the national leader in enhancing the quality of life and realizing the potential of all people with Down syndrome.
The NLCDD is a partnership of national developmental disabilities organizations that offers intensive week-long leadership institutes, distance learning opportunities, mentoring programs, continuing education programs, both undergraduate- and gradate-level campus-based programs, and a resource-rich website all aimed at improving the lives of people with developmental disabilities and their families.
The President's Committee on Mental Retardation, now known as the President's Committee for People with Intellectual Disabilities, was established to provide advice to the President and to the Secretary of Health and Human Services concerning a broad range of topics relating to people with intellectual disabilities.
TASH is an international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm whose mission is to eliminate physical and social obstacles that prevent equity, diversity, and quality of life. This site is divided into sections for students, family members, and professionals and features: a searchable database of postsecondary education programs that support youth with intellectual disabilities; a discussion board designed by students for students who are interested in sharing college experiences; a "Choice for Everyone" listserv, hosted by the Institute for Community Inclusion; and a resource section that contains web-based resources with links to other sites and a bibliography listing related publications.
The mission of the Vanderbilt Kennedy Center is to improve the quality of life of persons with disorders of thinking, learning, perception communication, mood and emotion caused by disruption of typical development. The Vanderbilt Kennedy Center has evolved into an interdisciplinary research, training, diagnosis, and treatment institute, embracing faculty and available resources. The Center brings together scientists and practitioners in behavior, education, genetics, and neuroscience to work together in unique ways to solve the mysteries of development and learning.
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