University of Connecticut |
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Disability-Related Resources
Brain Injury / Traumatic Brain InjuryCONNECTICUT Brain Injury Association of Connecticut (BIA) As a not-for-profit agency working since 1982 for individuals with traumatic brain injury (TBI), the Association promotes support groups and service systems for persons with brain injury and their families; provides education about TBI, its related problems and prevention; advocates for community and medical resources needed to provide comprehensive TBI care; and directly meets selected needs that are currently unaddressed by existing systems. The Association is a chapter of the National Head Injury Foundation and a member of the Combined Health Appeal. Disability Resources is a nonprofit organization estaglished to promote and improve awareness, availability and accessibility of information that can help people with disabilities life, learn, love, work, and play independently. They serve thousands of individuals with disabilities through a multidisciplinary network of service providers and consumers. In order to reach as many people with disabilities as cost effectively as possible, they target their services and publications to libraries, disability organizations, independent living centers, rehabilitation facilities, educational institutions, and health and social service providers. Visit their site for Connecticut resources via the above link or visit their home page at www.disabilityresources.org.
The Bettey Clooney Foundation for Persons with Traumatic Brain Injury has been serving th eneeds of persons with TBI since 1983. The Foundation was named in memeory of Betty Clooney, younger sister to Nick & Rosemary Clooney and aunt of George Clooney. Betty died of a brain trauma caused by an aneurysm. As a result of the family tragedy, the Clooney family decided to establish a rehabilitation and health information and community reentry program which addresses the needs of the survivors of cognitive disabilities caused by strokes, aneurisms, brain tumors, brain storms, brain cancer, and brain damage from trauma, age and other neurological injuries. BrainandSpinalCord.org was created as a knowledge-base for brain injury and spinal cord injury survivors. While the site is relatively new, they hope to eventually have answers and information about all of the most frequently asked questions and important issues facing survivors. Their mission is to be the most reliable, timely, and complete resource on the internet for brain injury and spinal cord injury survivors. Their hope is that their website will become relied upon as a trustworthy resource for the community and for those who are searching for information.
The BIAA provides information, education, and support to assist the 5.3 million Americans currently living with traumatic brain injury and their families. Brain Injury Online is a comprehensive source of information about living with an injured brain. Managed and maintained by Beth and Larry Jameson, authors of Brain Injury Survivor's Guide, this site combines their expertise as well as that of many others who deal with common problems on a daily basis. Visit the TBI-Veterans section via the above link and visit their home page at www.brain-injury-online.com to access additional information.
HansonHouse TBI Clubhouse is a non-profit organization developed by and for people with TBI. Clubhouse programs encourage individuals to develop new relationships, interests, and build on their strengths and capabilities.
The hallmark of this company is that they provide up to date, accurate and needed information on brain injury and concussion that is based on best practices and current research. They take out the jargon and present it in user-friendly formats that can be readily understood and applied by clinicians, famlies, and educators. Their books, manuals, tip cards, and tool kits describe the symptoms, treatment, cognitive rehabilitationand recovery of individuals with brain injuries acquired due to trauma, blast injuries, and concussion. They are written for clinicians, therapists, educators, advocates, caregivers, and families for use in hospitals, rehabilitation programs, schools, private practice, community agencies, and home settings.
The IBIA is dedicated to the development and support of multidisciplinary medical and clinical professionals, advocates, policy makers, consumers and others who work to improve outcomes and opportunities for persons with brain injury.
The NCIPC is part of the Centers for Disease Control and Prevention. For over 60 years, CDC has been dedicated to protecting health and promoting quality of life through the prevention and control of disease, injury, and disability. They are committed to programs that reduce the health and economic consequences of the leading causes of death and disability, thereby ensuring a long, productive, healthy life for all people. Visit the NCIPC site via the above link for information on traumatic brain injuries.
NABIS is a society comprised of professional members involved in the care or issues surrounding brain injury. The principal mission of the organization is moving brain injury science into practice. Whether it is in the area of clinical care, research, policy, or litigation, the organization stands behind the premise that advances in science and practices based on application to the scientific evidence will ultimately provide the best outcomes for those with brain injuries and the community as a whole. NABIS was created specifically to address the needs of multidisciplinary professionals dedicated to brain injury - providing education programs, scientific updates and a platform for comunication and professional exchange. NABIS welcomes the opportunity to work with other brain injury groups to address the key issues for professionals in North America.
The Center's mission is that all those affected by TBI have access to information, resources, and services that maximize participation in their communities and that treating professionals have the necessary information to meet the needs of persons with TBI; that all areas of community integration, including traditionally under-emphasized areas such as friendship, intimacy, and creative expression be addressed; that attiudinal barriers to community integration of persons with TBI be reduced; and that new types of partnerships, such as those with the larger disability community, be established in order to empower persons with TBI to have a voice in cerative community services and networks to facilitate maximal community participation.
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